Hey, blogosphere, I know I haven’t been on in a while, and not particularly faithful in the first place, but I am signed up to do the MuscleWalk for the MDA in Greenville, SC on May 2nd, and would like to ask you guys to be superheroes, and share my donation page all over the place. The link to my page has my son’s story, and I am debating tweaking it and sharing it here, anyway, so it could be a sneak peak for you guys 😉
I’m not asking you to donate, unless you’d like to, in which case, awesome!, but I figure, the more it’s shared, and spread around, the more people can become aware of Duchenne, and other neuromuscular diseases, and we all know that knowledge is power. The more people that are aware, the more money goes to the MDA for the research and clinical trials that will help, and eventually, save, boys like my Asa. In the meantime, they also use funds to cover summer camp costs, so these kids can have a week surrounded by other kids with similar diseases, and not feel so alone. The funds also cover the cost of the clinics, which are available to these kids at no cost to the families. This means specialists that are able to follow their progress that they may not otherwise have access to.
I don’t advocate for many charitable organizations, but the MDA really puts the money donated back into their people, and that is a wonderful thing. This is not for me; if you don’t want to contribute on my page, please consider just giving a donation straight to the MDA. Every little but helps! If you happen to be in the Greenville area on May 2nd, consider signing up to join us on the walk. Our team name is Asa’s Unstoppables.