Dangit, Katy Perry!

 Okay, so we’ve all seen the videos of sick kids singing Katy Perry’s ‘Roar’, and everyone has claimed it as their anthem, right? No argument, it’s a great song, and when it first showed up on my news feed, it was on a survivor of Domestic violence’s page, Melissa Dohme, who I greatly admire. I heard it, and, being a survivor myself, was like “Whoah!” and would rock out to it as my own personal anthem. Then I saw the cancer kids singing it, and it was different. These kids are fighting for their lives, and yet telling cancer to kiss it, which I love.

 Today, the song hit me like a Mac truck to the heart. My son has been enthusiastically singing it when he hears it, which I thought was adorable. Today, as we were both singing it, I realized how much this song really pertains to him. He has Autism, which sets him up to be the ‘weird kid’ and has caused some comments to be made that he isn’t even aware of, but piss me off royally. That’s a good reason to her the song differently, right? Yeah, that’s not enough. He also has Becker/Duchenne Muscular Dystrophy, and I see him struggle everyday, falling more, getting tired trying to keep up with the other kids, even lifting little 2 pound weights over his head requires both hands. I’ve noticed the backwards lean that is so common in these boys, but shouldn’t be obvious until he’s 8, according to most timelines I’ve found. He just turned 7 last month. He’s in a literal race against time and his body, and there’s nothing I can do, but make him happy. Yes, I probably spoil him and coddle him, but I can’t make myself look into his baby blues, and not see what he’s facing, and be okay with causing him any sadness. Yes, I tell him no sometimes, but not nearly as much as some think I should.

I digress. This is about the song, and how it hit me like a semi today. So, here I am, singing (quite badly, of course) along with Katy Perry, and my little boy is just rocking out, rocking back and forth, and gesturing, and I realized, this is HIS song. Yes, many claim it, but this is HIS song. He may not know the battle he’s up against, but he’s already declaring that he’s gonna fight. He’s gonna give it all he has, and he’s not gonna be afraid. There’s a lot to be said for that kind of blind strength, faith, and determination. Maybe I should take a page from his book. Maybe we all should.

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2 thoughts on “Dangit, Katy Perry!

  1. Hi, I am the father of a 23 year old son who is severely autistic. His name is Micah. I have written a book about being a single father raising a son with autsm, and his twin brothers. A number of publishers have shown interest but do not think I have a strong platform to promote the book. One thing they want is for my blog to have more followers. Please follow my blog and help me get “Micah’s Touch” published. Thank You, Darian http://www.darianburns.com

    • My apologies. For some reason, WordPress hasn’t been sending my notifications, and life has been crazy, so I only just received your note. I have followed you, and wish you success in the publication of your book. Also, many kudos to you on being a single parent. My son is on the higher functioning end of the spectrum, but I can’t imagine going it alone (especially now that we have the dmd diagnosis as well) I have much respect for the parents who navigate these waters without a partner.

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